International Stammering Awareness Day – 22nd October 2014

Next week families and organisations around the world will be raising awareness about stammering / stuttering.

Here is an information sheet that was written by 10 year old Kane, to share with his friends and teachers at school.  We think it’s worth sharing.  Please click on the image to see a larger view.

Stammering Awareness day - letter from 10yr old Kane

 

For more information about stammering, help and support please visit The British Stammering Association at http://www.stammering.org/

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World Osteoporosis Day – 20th October 2014

This year World Osteoporosis Day is focusing on osteoporosis in men.  Around 1 in 5 men over the age of 50 will experience a bone fracture due to osteoporosis.

Osteoporosis is a disease which gradually weakens the bones, which can lead to bones breaking after even a minimal bump or minor fall.

What are the risk factors for osteoporosis?

In men:

  • Age (70rs + or 50ys + if you’ve broken a bone since turning 50)
  • Family history of osteoporosis
  • Long-term use of oral corticosteroids
  • Certain other medications (visit http://www.worldosteoporosisday.org/real-men for more details)
  • Some chronic diseases such as rheumatoid arthritis, Crohn’s disease, Celiac’s disease, diabetes, chronic liver or kidney disease, amongst others.
  • Low testosterone levels (hypogonadism)

In women:

  • Being over 50
  • Menopause / post menopausal
  • Family history of the disease
  • Low body weight / being small & thin
  • Broken bones or height loss

People under the age of 30yrs are the group most able to make a difference to their bone strength and reduce the risk of osteoporosis through;

  • Regular weight bearing exercise
  • Eating a diet that includes recommended levels of calcium & vitamin D (a list of beneficial foods can be found at: http://nof.org/foods)
  • Not smoking or stopping smoking
  • Not drinking too much alcohol

 Further information and support

The National Osteoporosis Society have produced a comprehensive guide for men, women and children.

The World Osteoporosis Day Website has lots of information for men and patient stories.

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October 2014 – Kirklees Council holiday activities for children with additional needs and their families

Please click on the image below to see details about October half term holiday activities for children with additional needs in Kirklees.  These have been organised by the council’s Youth Support Service and Disabled Children’s Service.

It is recommended that you book a place as soon as possible as these events are very popular.  Also you may wish to ring the activity providers beforehand to discuss whether the activity is suited to your child.

Kirklees October 2014 activities image 1Kirklees October 2014 activities image 2

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Archery Sessions for people with a disability

Archery sessions for people with a disability take place every Saturday 3.30pm – 4.30pm at Dewsbury Sports Centre.

Sessions are held for juniors and adults.

  • Have-a-go sessions
  • No experience required
  • All equipment provided
  • Qualified archery instructors

For further details please contact Umar Makda on 07809 212457.

To book a place please contact Dewsbury Sports Centre on 01924 325021.

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Leeds Deaf Juniors Football Club – coaching sessions for 2014-2015 season

Leeds Deaf Juniors Football Club are pleased to announce their coaching sessions for the 2014-15 season.

Coaching sessions take place at:

Sports Hall, Leeds City Academy, Woodhouse Cliff, Leeds, LS6 2LG

On Sundays throughout 2014-15 (see image below for dates), 10am to 12noon

Ages 5+, all abilities welcome.  Communication support provided

Just £4 per child, £2 per sibling

Young people will learn new skills, make friends and have lots of fun! They’ll also get the opportunity to play matches and in tournaments!

If you want to know more about the club you can view their promotional video here at: https://www.youtube.com/watch?v=KSf0GxBIhIM

For more details about the sessions please see the image below or contact:

Paul Young, Head Coach
Email: paulphonak@gmail.com
Tel: 07897 484879 (text only)
Web: www.clubwebsite.co.uk/leedsdeafjuniorsfc

Leeds Deaf Juniors FC - Coaching sessions - 2014-2015 image

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‘Right to have’ a personal health budget – from October 2014

People that are entitled to NHS Continuing Healthcare now have the ‘right’ to a personal health budget.

Clinicians can also offer personal health budgets to others that they feel may benefit from the additional flexibility and control. The NHS Mandate commits to a further roll out of personal health budgets to people who could benefit from April 2015.

A personal health budget is an amount of money to support a person’s identified health and wellbeing needs the application of which is planned and agreed between the individual, their representative, or, in the case of children, their families or carers and the local NHS team. It is not new money, but is money that would normally have been spent by the NHS on a person’s care being spent more flexibly to meet their identified needs.

According to the pilot and evaluation, there are five key features of a personal health budget that will ensure people experience the best outcomes possible. Ideally, individuals or their representatives should:

  • Know upfront how much money they have available for healthcare and support.
  • Be enabled to choose the health and wellbeing outcomes they want to achieve, in dialogue with one or more healthcare professionals.
  • Be involved in the design of their care plan.
  • Be able to request a particular model of budget that best suits the amount of choice and control with which they feel comfortable.
  • Be able to spend the money in ways and at times that make sense to them, as agreed in their plan.

People can have a personal health budget in one of the following, or any combination of the three, ways:

1. A notional budget – where the commissioner (for example the CCG) holds the budget but utilises it to secure services bases on the outcome of discussions with the service user.

2. A third party budget – where an organisation independent of the individual and the NHS manages the budget on the individual’s behalf and arranges support by purchasing services in line with the agreed care plan.

3. A direct payment – where money is transferred to a person or his or her representative or nominee who contracts for the necessary services.

One of the changes that will take place from September 2014 is the introduction of Education, Health and Care (EHC) plans, which will replace special educational needs statements and Learning Difficulty Assessments (LDAs).

Roll out of personal budgets will take place alongside the introduction of EHC plans, and so from September 2014 children and young people assessed as needing an EHC plan will have the option of a personal budget that will bring together money from education, health and social care into a single budget.

Right now, local authorities across the country are engaging with their partners and parents to look at how these new reforms will work in reality and from September 2014 they will be publishing their ‘local offer’ which will include more detail about how personal budgets will work for families.

More general information about the SEND reforms can be found on the SEND Pathfinder website.

A guide to the SEND reforms for parents and carers has recently been published by the Department of Education.

 

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Northern Ballet – dance programme for people aged 16+ with a mild/moderate learning disability

Ability is an exciting new one day dance course specifically created for people with mild to moderate learning disabilities. The course will enable people to train, create and perform alongside professional dancers in our state of the art studios in Quarry Hill.Participants will form their own dance performance company, create new work and perform it.

The course will:

  • Improve participants health and fitness
  • Develop communication and social interaction skills
  • Raise self esteem and develop a sense of achievement
  • Enable participants to be creative and provide opportunities to express themselves

Term times

26th Sept – 5th Dec 2014
16th Jan – 27th March 2015
24th April – 3rd July 2015

Taster days

Fri 24th Oct, 10.30 – 12.30pm
Fri 28th Nov, 10.30 – 12.30pm

The course is for anyone aged 16+ and all the activity is adapted to meet individual needs.

For more information please contact: sophie.alder@northernballet.com or call 0113 2208000

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Exercise, Movement and Dance Survey

The Exercise, Movement and Dance Partnership are currently running a survey to obtain insight into the needs of people with a disability in relation to Exercise, Movement and Dance.

The survey is designed to get the views and opinions of people with a disability/additional needs. Please click on the link below to start the survey and a chance to win a £50 Amazon voucher.  The surveys closing date has been extended to Friday 10 October.

Please take the survey here: https://www.surveymonkey.com/s/InclusiveEMDSurvey

If your require any help with the survey, please contact Phil Gower on 01403 266000 or philgower@emdp.org

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World Arthritis Day – 12th October 2014

World Arthritis Day raises awareness of rheumatic and musculoskeletal diseases (RMDs) amongst the general public and the medical community and aims to influence public policy.

The theme of this year’s campaign is living better and ageing well – providing advice and information covering the different issues of importance for people growing up and growing older with a RMD.

Please visit http://www.worldarthritisday.org/tools-for-you/people-with-rmd/living-better where you will find a series of features being posted between now and December.  The first feature is ‘healthy living’, under which the first factsheet about physical activity and exercise has already been posted.  The factsheet provides information for people of all ages.

 Other support and information for young people with arthritis and their families

Arthritis Care have information on their website specifically about arthritis in children.

The Childrens Chronic Arthritis Association offer emotional and practical support to maximise choices and opportunities for young people with childhood arthritis and their families.

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World Mental Health Day – 10th October 2014

Every year the Mental Health Foundation celebrates World Mental Health Day. This year they are highlighting Schizophrenia.

Worldwide Schizophrenia affects around 26 million people.  Schizophrenia affects how a person thinks, feels, and acts but it’s actually a word that describes a number of symptoms that psychiatry has labelled a disorder. Not everyone with schizophrenia has the same symptoms and the definition of the disorder is wide, including a number of combinations of different things. 

Schizophrenia may make it hard for people to judge reality and key features of early psychosis include: 

  • Sleep disturbance
  • Appetite disturbance
  • Marked unusual behavior
  • Feelings that are flat or seem inconsistent to others
  • Speech that is difficult to follow
  • Marked preoccupation with unusual ideas
  • Ideas of reference – thinking unrelated things have a special meaning, ie people on television talking to you
  • Persistent feelings of unreality
  • Changes in the way things appear, sound or smell.

Schizophrenia can occur in anyone but it’s a treatable disorder. Long term medication may be necessary for some people but talking therapies and self-help groups can also be effective. 

To find out more about this disorder, please visit: http://www.mentalhealth.org.uk/help-information/mental-health-a-z/S/schizophrenia/

 Caring for someone with a mental health problem

The mental health charity Mind, provide a downloadable guide for carers of people with mental health problems.

Youngminds provide a wealth of advice and support for children and young people affected by a mental health problem and for parents.

A document published through collaboration between The Princess Royal Trust for Carers and the Royal College of General Practitioners, entitled ‘Supporting Carers and action guide for general practitioners’ recognises the effects on a person’s mental health and wellbeing of being a carer and outlines how GP’s can better support carers.

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