National Support

Afasic England: working to support children and their parents, enabling them to overcome their speech and language difficulties.
The British Heart Foundation: The UK’s number 1 heart charity
The British Legion:  Support for serving and former serving men and women: financial and benefit advice, financial support, breaks away for families and children.
Carers UK: Carers UK is a charity set up to help the millions of people who care for family or friends.
CHARGE Family Support Group: The group is run by parents and grandparents of individuals with CHARGE and professionals with a particular interest in the condition. We work on an entirely voluntary basis and membership is free. New members are always welcome.
Contact: (Formerly Contact a Family) supports the families of disabled children whatever their condition or disability. They offer a helpline, advice and support and loads of information.
Council for Disabled Children: The Council for Disabled Children (CDC) is the umbrella body for the disabled children’s sector in England
Care for the family (bereaved parents):  Support for bereaved parents by a Christian organisation.
Down’s Syndrome Association: Providing information and support on ALL aspects of living with Down’s syndrome to ALL who need it.
Dyspraxia Foundation: The Foundation seeks every opportunity to increase understanding of Dyspraxia, particularly among professionals in health and education and encourages its local groups to do the same
ERIC – for support with bedwetting and bowel problems
Genetic Alliance UK: is the national charity of over 150 patient organisations supporting all those affected by genetic disorders.
IPSEA: IPSEA offers free and independent legally based information, advice and support to help get the right education for children and young people with all kinds of special educational needs (SEN) and disabilities.
Mencap: Mencap is the leading voice of learning disability. Everything we do is about valuing and supporting people with a learning disability, and their families and carers.
National Autistic Society: are the leading UK charity for people with autism (including Asperger syndrome) and their families. We provide information, support and pioneering services, and campaign for a better world for people with autism.
National Deaf Children’s Society: The National Deaf Children’s Society is the leading charity dedicated to creating a world without barriers for deaf children and young people.
National Specialist colleges: Provides a directory of colleges that promote equality of opportunity and access to further education for all learners with learning difficulties and disabilities.  It has over 70 member and associate member colleges.
Pathological Demand Avoidance Society: offers support, advice and information to anyone involved with an individual with PDA, whether suspected or diagnosed, child or adult.
Royal National Institute of Blind People (RNIB): we’re here for everyone affected by sight loss. Whether you’re losing your sight or you’re blind or partially sighted, our practical and emotional support can help you face the future with confidence.
Scope: Scope works with disabled people, of all ages, and their families, across England and Wales. We offer practical, everyday support and deliver campaigns that can change lives.
Sense: is a national charity that supports and campaigns for children and adults who are deafblind or have sensory impairments.
Sibs: For brothers and sisters of disabled children and adults
Special Kids in the UK: Online support group for families of disabled children with special needs. Special Kids in the UK is a charity for families who have a child of any age with special needs.
SWAN (Syndromes Without A Name): is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed conditions.
Unique – Rare Chromosome Disorder Support Group: Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them.

Young Minds – a mental health charity for children, young people and parents

SEC Policy Network part of Council for Disabled Children: a group of organisations who protect and promote the rights of disabled children and children with special educational needs (SEN).
If you want your groups information adding to this page please contact us.