Contact a Family – Counting the Costs Campaign

This week Contact a Family launched their Counting the Costs campaign to ease the financial pressure on families with disabled children.

They are asking parents and carers to  send a campaign email to your MP to ask them for their support.

Contact a Family are using findings from a survey of 3,500 families to urge the government and energy companies to introduce measures that will stop families with disabled children going without food and heating.  Their proposals include fairer deals for fuel bills and an increase in the carer’s allowance earnings threshold.

How you can get involved

A template email  is available for you to use.  Contact a Family would like you to send this to your MP, asking them to:

  • push the government to increase access to financial support and work
  • call on all energy companies to offer a fairer deal to households with disabled children
  • tell families with disabled children about the financial help that’s available.

If you have any questions about the research or want to know more about getting involved in the campaign, email Una.summerson@cafamily.org.uk or call 020 7608 8742.  You can also find out more information at the Contact a Family website.

Posted in Collective Voice | Leave a comment

Kirklees Council Open Space Survey

Kirklees Council has recently commissioned consultants to undertake an Open Space Demand Assessment to understand the current use and demand for open spaces across Kirklees.

This will help inform council policies and strategies about open space in the future.

Please click on the link below to give your views about open spaces in the area where you live.

It is available athttps://www.snapsurveys.com/wh/s.asp?k=141510870966

Posted in Collective Voice, Good Information | Leave a comment

Christmas Disco for adults with Special Needs

Huddersfield Downs Syndrome Support Group are advertising a Christmas disco, taking place at the Irish Centre, Fitzwilliam Street, Huddersfield, on 5th December, 7.30pm till late.  Please see the attached flyer below.

HDSSG CHRISTMAS-DISCO-2-1-page-001-723x1024

Posted in Events | Leave a comment

Cliffe House – Christmas Events 2014

Cliffe House in Shepley, Huddersfield are holding the following Christmas events:

  • Christmas Fair – Saturday 29th November 2014, 10am – 3pm.  An array of gifts, Christmas goods and cards will be on sale, along with entertainment and craft activities for children.
  • Meet Santa!  Have Christmas lunch with Santa on either the 22nd or 23rd December, 12.30pm onwards.
  • Breakfast with Santa – on Christmas Eve from 9.30am.

For more details and menu options, please contact Cliffe House on 01484 222720 or visit: http://www.kirklees.gov.uk/cliffehouse/index.aspx.

Posted in Events | Leave a comment

Anti Bullying Week 17th – 21st Nov 2014 – Stop Bullying for All

This year is the 15th Anniversary of Anti bullying week and the theme is ‘let’s stop bullying for all’.  The focus is on children and young people who have a disability and/or special educational needs who are bullied at school.

Youngminds (http://www.youngminds.org.uk/for_children_young_people/whats_worrying_you/bullying) describes bullying as someone hurting someone either physically, by hitting or kicking, or verbally by calling them names or teasing them.

The Anti-bullying Alliance (www.anti-bullyingalliance.org.uk) define it as repetitive, intentional hurting of one person or group by another person or group, where the relationship involves an imbalance of power.

Bullying can be done in a number of ways – directly, such as face to face; online – such as through social media, via text messages or indirectly such as spreading nasty rumours or excluding someone from friendship groups.

Disabled children may also experience forms of bullying like:

  • manipulative bullying: where a person is controlling someone
  • conditional friendship: where a child thinks someone is being their friend but times of friendliness are alternated with times of bullying
  • exploitative bullying: where features of a child’s condition are used to bully them.

The general consensus is that your child should not ignore bullying and that they should talk to someone, be it family, a teacher or a mentor.  If bullying is going on at school, the school should operate an anti-bullying policy.

The Law

Some forms of bullying are illegal. These include:

  • violence or assault
  • theft
  • repeated harassment or intimidation, eg name calling, threats and abusive phone calls, emails or text messages
  • hate crimes

www.gov.uk recommend that you report any incidence of bullying by school peers to your child’s school in the first instance and they can involve the police as necessary under the legal requirements.  You can also report bullying direct to the police.  If you’re reporting cyberbullying, keep a record of the date and time of the calls, emails or texts – don’t delete any messages you receive.

Information and support

The Anti-bullying Alliance (http://www.anti-bullyingalliance.org.uk/send-programme/) have an information hub about reducing the bullying of children and young people with special educational needs and disabilities (SEND).

BullyingUK have a wide range of information and resources, including videos, on their website: http://www.bullying.co.uk/anti-bullying-week/anti-bullying-week-2014/.

They are also running a national bullying survey to provide them with in-depth information on bullying and how it affects children, young people, parents, carers and teachers.

Contact a Family have a guide to Dealing With Bullying – for families with disabled children on their website at: http://www.cafamily.org.uk/media/793674/dealing_with_bullying.pdf.

Beatbullying (www.beatbullying.org) offers online information and practical advice on dealing with bullying for children and young people, parents and professionals.

UK Safer Internet Centre – Helpline: 0844 381 4772  www.saferinternet.org.ukprovide information and resources on internet safety, and responsible use of technology for parents, teachers and children.

Newsround have produced a guide to bullying for children – it uses role play video and voice overs to help children think about what bullying is, what might cause people to do it and the effect on victims.  Please visit http://www.bbc.co.uk/guides/zqgbgk7#z2crcdm to find out more.

Local Parent Partnership Services (PPS) offer advice and support to parents and carers of children and young people with special educational needs. They are statutory services which means there must be one in every local authority.

Posted in Good Information | Leave a comment

Pantomime Trip organised by the Kirklees Deaf Children’s Society

Tickets are available to go and see Snow White and the Seven Dwarfs on Friday 2nd January 2015, 7.15pm performance at the Alhambra Theatre, Bradford.  It will be a signed performance.

Tickets for deaf children and their siblings are paid for by KDCS with all other tickets available at a subsidised price of £12.

Please contact KDCS for more details or to book tickets at:

email: kirklees@ndcsgroup.org.uk  or Facebook page: Kirklees Deaf Children’s Society.

Posted in Events | Leave a comment

PCAN AGM – please join us on 24th November 2014, 7pm – 9.30pm

Just a reminder that our Annual General Meeting is taking place next Monday 24th November between 7pm – 9.30pm at Northorpe Hall, 53 Northorpe Lane, Mirfield WF14 0QL.

Please come along so that we can share with you what PCAN has been doing over the past year and gather your views about future projects PCAN could get involved with.

As always, there will be opportunities to meet with and chat to other parents and hot refreshments will be available. In addition, Redena Hamer from the KIAS (formerly Parent Partnership Service) will be there to talk about the new advice service for children and young people with special educational needs and disabilities (aged 0-25 years).

If you would like to get involved with PCAN either as a volunteer, for instance to help with social events or working on a group, or if you would be interested in becoming a Trustee, please contact us on 07754102336 for a chat.

To book a place at the AGM please go to: https://www.eventbrite.co.uk/e/pcan-annual-general-meeting-tickets-13500368967.  (Knowing how many of you are likely to attend will help us with catering and room provision.)

Posted in Collective Voice, Events, Talk and Support | Leave a comment

World Diabetes Day on 14th November 2014

What is Diabetes?

Diabetes Mellitus is a condition where the amount of glucose in your blood is too high because your body cannot use it properly as fuel.  The blood that courses around our bodies, via our arteries carries lots of nutrients (including glucose) to our organs, muscles and cells. A hormone called insulin, which is produced by the pancreas, helps us to absorb the glucose from our blood into our cells, where it provides energy for our muscles / body.  A lack of insulin means that instead of the glucose being absorbed into the body’s cells, it builds up in the blood.

There are two types of Diabetes Mellitus:

Type 1 – no insulin is produced.

Type 2 – not enough insulin is produced, or the insulin that is produced is not working properly.

(Another type called gestational diabetes can also occur in some pregnant women.  For more information about this type please visit Diabetes UK.)

Type 1 diabetes

This accounts for around 10% of all adults with diabetes (source: Diabetes UK website).  It can develop at any age, but usually appears before the age of 40, and especially in childhood.  It is treated by daily insulin injections, a healthy diet and regular exercise / activity.

Type 2 diabetes

This usually appears in people over the age of 40.  Some of the risks of developing type 2 diabetes are:

  • You’re aged over 40 years (over 25 yrs if you are of South Asian origin)
  • You have a close family member with diabetes (parent, sibling)
  • You’re overweight or obese
  • You’re of South Asian, Chinese, African-Caribbean or black African origin
  • You’ve ever had a heart attack or stroke or you have cardiovascular disease.

(For more details about type 2 diabetes and risk factors please visit the NHS website.)

Signs and symptoms

Diabetes can cause a variety of symptoms. The main symptoms of undiagnosed diabetes include:

  • urinating frequently, particularly at night
  • feeling very thirsty
  • feeling very tired
  • unexplained weight loss and loss of muscle bulk
  • itching of the genitals or frequent episodes of thrush
  • cuts and wounds that heal slowly
  • blurred vision

The symptoms of type 2 diabetes may not be so obvious, because the condition usually develops slowly over a number of years. It may only be picked up during a routine medical check-up.

 Treatment

Type 1 – requires insulin injections and a healthy diet and regular physical activity.

Type 2 – can be controlled by making healthy changes to your lifestyle, such as diet and exercise.  However, as it is a progressive condition, you may eventually need to take medication.

It is important to have diabetes diagnosed as early as possible as diabetes is a lifelong condition that gets progressively worse if not managed properly.  It can also cause other complications such as cardiovascular disease, kidney dysfunction and visual impairment.

This year’s World Diabetes Day theme

This year’s theme is about health eating.  

  • Investing in a healthy breakfast will reduce the global burden of diabetes and save billions in lost productivity and healthcare costs.  
  • Read why
  • Ensuring access to an affordable and healthy breakfast is essential to reducing the global burden of diabetes. Read why
  • Healthy eating options that can help reduce your risk of type 2 diabetes. Click here
  • Healthy and unhealthy breakfast options. Click here

For further information and support you can contact the following organisations:

International Diabetes Federation – http://www.idf.org

Diabetes UKwww.diabetes.org.uk they provide a helpline, information roadshows, self-management training and local support groups.  They have areas of their website dedicated to young people with diabetes.

Diabetes Research & Wellness Foundationwww.drwf.org.uk fund research into diabetes and raise awareness about the condition.  They have a page for parents and carers.

NHS choiceswww.nhs.uk this website provides in depth information about a range of health conditions, including diabetes.

Posted in Good Information | Leave a comment

Kirklees Active Leisure proposed budget cuts – have your say

Kirklees Active Leisure (KAL) are urging its customers to have their say about the council budget cuts that are likely to effect sport, exercise and wider physical activities in the district.

Taking into consideration the overall reduction plan for the next 3 years, it is estimated that Kirklees Active leisure will have to make a total of £1,150,000 in cumulative cuts to over the next three years. (For more information on this, please see Page 21 on the Medium Term Financial Planlink, from the Kirklees Council website home page.)

The consultation runs until Friday, December 5th. You can take part in the consultation by visiting:http://kirklees.gov.uk/community/yoursay/budget_2015_2.shtml

Posted in Collective Voice | Leave a comment

National Deaf Children’s Society – Multi-Activity Weekend, York

If your deaf 11 – 15 year old loves having fun and trying new things then they may well enjoy this weekend to take part in sports and creative activities with other deaf children.

The event runs from 20th February 2015 @ 5pm to 22nd February 2015 @ 4pm.

The venue is YHA York, 42 Water End, Clifton, York Y030 6LP

To find out more or to book a place please contact:

Sally McNamara
Event Organiser
Vincent House, Quay Place, 92-93 Edward Street, Birmingham
B1 2RA
Email: sally.mcnamara@ndcs.org.uk
Phone: 0121 234 9822
Fax: 0121 233 9575

Posted in Events | Leave a comment